Monday Night Run

I went for a 5 mile run tonight while my son was at soccer practice. I just kept thinking “how would the AP handle this?”

After waking up low this morning and pushing the start of my run back to make sure my blood glucose was stable, I am more determined to have the artificial pancreas.

How long is it really going to take to get it to market?

How much money is it going to take to get it to market?

What more can I do to help?

End of Study – Preliminary Statements

While this AP has not been perfect through the weekend, it has shown the ability to learn and improve on dual hormone therapy.  I am INCREDIBLY encouraged and EXCITED beyond belief at the thought of being able to wear the 1st generation commercially available AP as soon as possible.

Average BG, Saturday – 142

Average BG, Sunday – 126

And I didn’t do a thing.  Now that’s just cool.

There will be naysayers, and I’m ok with that.  Different insulin pumps are liked or disliked for different reasons.  CGM’s are utilized by different folks.  What I am saying here is that you combine these devices and make T1D management easier?  I am in.

The hurdles faced during the weekend are being addressed with the next generation AP.  The research director is already planning for the generation after that and working towards the successful delivery of a dependable product.

I am encouraged by this team because they have a personal drive.  Ed Damiano’s son is T1D and Ed wants this device before his son goes to college in 5 years.  He knows the hurdles, but is not frustrated by them, and the culture of the study staff follows suit.  I am impressed and look forward to working with them again.

I want to thank the study staff, especially Kathy, Kathy, Kendra (all pictured L-R), Rick, Helen Ann,and of course the lead guys Ed Damiano and Firas El-Khatib.

Thank you.

Now stayed tuned for some more information once I get it from the staff later this week.

Day 3 – Almost Sprung

Getting ready with my Dexcom CGM.  Not the NEW G4 that I have been wearing all weekend and the one that will be used in the next generation AP.

What do you think?  Should I volunteer for the next phase?  They’re talking about including rides/runs into the next phase, which is partial outpatient.

Hmmmm?

 

Day 3 – Post Lunch (cont.)

3:00pm BG – 117

3:15pm  BG – 112

3:30pm BG – 102

And there it is.  This artificial pancreas is coachable. I can’t tell you how exciting that is.  It’s good to see that it is saying what they say it would.  The best part is that it appears that the Navigator CGM and the actual blood glucose readings are getting closer on the chart, i.e., less of a lag, so the insulin/glucagon adjustments are more accurate.

Day 3 – Lunch

Same as all the other meals, I spiked after breakfast and ran low before lunch.  Which left me starving for lunch.  Chicken fingers, lasagna, veggies, soda and orange juice.  Have to keep the carbs up!

Well, my blood glucose so far after lunch has not drasticaly risen like the other meals.  Let’s see what happens….

12 noon Lunch BG – 70

1:15 BG – 227

Day 3 – Sunday Funday!

Nothing better than a little football in bed while its raining outside, right?  They only show the New England – Buffalo game here at MGH.  Their all die hard Pats fans.  Gotta appreciate that!

7:30am – BG was 115.  It then spiked in the 340’s after my meal of oatmeal with raisins and syrup, toast and orange juice.  I am back down now to a BG = 90.  Do not be frustrated with the after meal spike.  Remember the following:

1. I was randomized in the group of the study that gets no pre-meal bolus.  The AP has to chase the carbs, and

2. Since there is a delay in the insulin absorption, it lags behind. And,

3. There is a delay in the CGM readings as well, and since the AP reacts based on the CGM, there is delay in the reaction.

They are testing the system in this part of the study based on worst case scenario, i.e., if I am the type of T1D that plugs in my AP and then does nothing with it.  They want to know that it is still safe and that it will work.

Pre-meal bolusing and some other things, I can already see how the AP will make my life better.

Day 3 – Random Thoughts

Since I am training for a marathon, let me share this article with you which came via post from my marathon, endurance, coach good friend.

http://www.nytimes.com/2012/09/30/sports/essay-the-honorable-clan-of-the-long-distance-runner.html?_r=1&

The similarities between managing T1D and running marathons is uncanny.  1. If you lie about your times, your only cheating yourself, 2. Always looking inward to figure out how to run farther/faster, 3. Constantly aware of your body and what its telling you, 4. If you are not aware of your body and what its telling you, you bring havoc upon yourself.

But my favorite line from the article is this:  Finnish distance runner Paavo Nurmi said: “Mind is everything; muscle, mere pieces of rubber. All that I am, I am because of my mind.”

Managing T1D is a head game.  1. Knowledge, 2. Drive, 3. Determination, 4. Calculations in the face of cognitive impairment, 5. Constant education.

What gets a marathoner past mile 20?  When legs feel like rubber and they don’t want to lift anymore?  The head does it.  The head tells the legs to shut up.

What gets a T1D through hypo or hyperglycemia?  The head does it.  The head tells the body to shut up, we have things to do.

And at the end of the day, a T1D analyzes, reviews, plans and rests.  Everyday.