Abby has been in the study since 2010 and gets annual blood work to test for the Antibodies that are known to kill islet cells and cause T1D. \u00a0The antibodies are called: GAD65, ICA, ICA512, and MIAA.<\/p>\n
As a child of someone with T1D, your chances of developing T1D is 4-5%. \u00a0Once you produce two (2) of these antibodies, your chances go up to 50%. \u00a0Both of my children have been developing two (2) antibodies for the last couple of years. \u00a0At this point, Abby’s body is attacking itself. \u00a0The immune system is producing four (4) antibodies that are very successful at killing islet cells.<\/p>\n
It is not a matter of if, it is a matter of when. \u00a0What do you say to your 7 year old daughter about this?<\/p>\n
Reality – \u00a0There’s an incredible amount of emotions that my wife and I have experienced over the last month since we received the results. \u00a0And she hasn’t even been diagnosed yet. \u00a0It could happen in the next day, or not for 10 years. \u00a0The likelihood is that it will happen sooner than later, but there is no way to know.<\/p>\n The reality is that my wife and I have the ability to get our head wrapped around the idea of her living with T1D. \u00a0We are not going to be surprised by the diagnosis, and we can plan (as much as one can) for the day when it happens.<\/p>\n The reality is that there is better information and better technology than when I was diagnosed in 1982. \u00a0Outcomes for those living with T1D are fantastic.<\/p>\n The reality is that none of this matters to a mom of a T1D at 2am when they are testing their child’s blood glucose levels. \u00a0None of this matters to the child with T1D when they just want to fit in. \u00a0None of this matters to a women with T1D who wants to have healthy children of her own.<\/p>\n Parenting a T1D:<\/p>\n I have had a unique perspective, living with T1D for the last 30 years. \u00a0However, I have not had my mother or father’s experience. \u00a0I have never had to go to work after being up half the night worrying about my child’s high or low blood glucose levels. \u00a0I have never had to have a conversation with my daughter about how to talk to their coach about having T1D. \u00a0I have never had to support her as she wonders if boys will ever ask her out on a date.<\/p>\n Truth is, my wife and I have a lot of parenting to do.<\/p>\n The Prevention Part of the Prevention Study:<\/p>\n TrialNet’s active prevention portion of the study randomize’s Abby into one of the two groups in the study: active drug, or the placebo. \u00a0It is double blind, so we will not know what she is receiving. \u00a0The drug is oral insulation, and taken orally every day, has shown to have the ability to postpone diagnosis up to seven years.<\/p>\n Oral insulin supposedly acts like a vaccine to temporarily keep the active antibodies from destroying the islet cells.<\/p>\n I HOPE that this is all for naught, and my daughter is the 1:1,000,000 (I’m making this number up, as I hope there’s a chance it won’t happen) that doesn’t get the disease.<\/p>\n I HOPE oral insulin is a good answer for my daughter.<\/p>\n I HOPE I am prepared to help my daughter navigate the world of living with T1D as my parents did for me.<\/p>\n I HOPE for a cure. \u00a0As soon as we can get it. \u00a0But until then, we will fight to fund the research needed to improve care, and possibly prevent the diagnosis for all those who are diagnosed or will be.<\/p>\n We knew. \u00a0We knew it was a possibility. \u00a0For either Jake or Abby, one or the other. \u00a0Or both. \u00a0And both is still not out of the question. We intended on participating in the TrialNet study, with my old friends … Continue reading ![\"IMG_4811\"](\"http:\/\/www.mikesmiles.org\/wp-content\/uploads\/2013\/06\/IMG_4811.jpg\")
<\/a><\/p>\n![\"5k2ndPlaceAbby\"](\"http:\/\/www.mikesmiles.org\/wp-content\/uploads\/2013\/06\/5k2ndPlaceAbby.jpg\")
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